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Remission! Options
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Little Miss Sunshine73
#1 Posted : Saturday, February 15, 2014 7:02:45 PM Quote
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Joined: 3/29/2013
Posts: 106
Location: Surrey
Hi,

Following my last appointment with my consultant, my DAS score is under 2 so I'm now apparently in remission ThumpUp He did however add that to have this score I'm on a hell of a lot of medication. I'm currently on; Methotrexate met jet (just been reduced to) 10mg, Hydroxychloquine 200mg, Omeprazole 20mg, Naproxen 500mg x 2, Prednisone 7.5, Folic acid 10mg weekly, Leflunomide 20mg.

The next plan is to start to reduce my steroids. I wondered if anyone else who has got to remission has been able to reduce their medication & not have any flare ups or if we all have to stay on a certain amount if medication to keep the symptoms at bay?

Thanks Louise
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suzanne_p
#2 Posted : Sunday, February 16, 2014 8:15:48 PM Quote
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Joined: 8/25/2010
Posts: 1,289
Location: Buckinghamshire
hi Louise,

i have to say when you are told you are in remission it always puzzles me slightly.

i am in Clinical Remission as my drugs are working for me, this was after Humira was added to the mix two and a half years ago. i was also on 10mg Methotrexate ( at one point was on 20mg ) but that was too strong for me for all sorts of reasons, and 2 x 200mg Hydroxycholoroquine. i stopped the Hydroxy after weaning off them on a reduced dose last October.

i have never taken steroids so can't give you any help there, and i don't take painkillers either.

so although i am doing well i don't class myself as in remission, as i wouldn't be if the drugs weren't doing their magic, hence Consultant calls it Clinical Remission.

i know this has been discussed many time's before on the forum, but in all honesty i wouldn't like to say how much reducing your meds would work.

be interested to hear other points of views.

Suzanne
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Little Miss Sunshine73
#3 Posted : Sunday, February 16, 2014 10:20:00 PM Quote
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Joined: 3/29/2013
Posts: 106
Location: Surrey
Yes it confuses me a little too as remission to me makes me think something has gone away & as my consultant said I wouldn't be at this stage without the medication I'm on! It's all such a learning curve for me still but I'm just coming up to my year of diagnoses so see what the next year brings!

Louise.
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lisamcb
#4 Posted : Monday, February 17, 2014 3:38:50 PM Quote
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Joined: 3/8/2013
Posts: 144
Location: Dumfries
Hi

It is so confusing isn't it? I feel how can they say we are in remission when we are still experiencing so many symptoms and on the meds?

It is like RA a total mystery at time....ThumbDown

Lisa xx
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anne_t
#5 Posted : Monday, February 17, 2014 5:07:55 PM Quote
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Joined: 12/3/2009
Posts: 302
Location: Rainham Kent
Hi,
Yes very confusing but check my post on 2 types of remission
Anne
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